Scuba diving dream for MD patient on a ventilator

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Hi Tony, don't worry, I am not laughing, just thinking about your ideas! I appreciate you taking the time and thought you put into it. Wanted to let you know that I plan to get into the pool next month, not to submerge yet, but just for basic water therapy and to see how my dry suit works.

OK-- I have copied your questions here and will emebed my answers in them.....

"I'm going to assume you have a tracheostomy...if so what size? Cuffed? Shiley?"
I use a custom made Bivona Trach tube, it is custom made to angle to my left 10 to 20 degrees, to work better with my scoliosis. Standard silicone shaft. It has a standard cuff on it, but I never use it, don't need it, plus I can't speak with it up, and speaking is very very important to me. For my dive I will NEED to speak to communicate my status. With my set up including the latex neck seal and dry suit hood, that should be sufficient to keep me dry. My doctor has someother ideas to water tight the stoma as well.

"why are you on the vent?"
A side effect of Duchenne MD is eventual Respiratory Failure, due to the muscle wasting. That's where I am.

"What other considerations do you have? I.e. do you have an intact gag reflex?"
I don't have any feeding tubes or the like. I eat normally, just have someone to feed me. My doctors have said that I don't have a gag reflex, years ago. But I do... with trach changes and other times, I notice the reflex.

"Are you on any pressure support? Assist control or SIMV? What about PEEP? Can you manage on atmospheric O2(21%)?"
My ventilator is set on Volume Control, I use the Assist Control setting. My Peep is set to 5. I am on Room Air during the day, sat normallly 97 to 100% but keep 1 LPM inline at noc.

"An experiment would have to be done on whether the Eagle could handle pressure at depth...Another experiment will have to be done with a vent circuit."
I have a friend that is also a respiratory therapist that is conducting an experiment using the HT50 Ventilator that I want to use. The HT50 has been tested already in hyperbaric chambers to withstand pressure up to 2.1 atmospheres. I also have thought that my standard vent tubing would not hold up to pressure underwater, so I ordered and now have some re-useable tubing that is much sturdier.

Your ideas were very interesting, and I would very much like to keep you in my circle of people helping me. Your experience with ventilators, and pressure changes and now the diving should prove to be very helpful. Thank you for writing to me today. I think I answered your questioins, but If I left something out or if you need more info, please let me know. Thank you for writing to Eagle as well. I hope that they reply with some interesting information! Take care and hope to "talk" again soon. If you would ever like to talk on the phone, PM me and I will give you my cell number.

Take care, that's cool that you are getting certified next month! Me, thanks to a nice dive instructor friend I am taking an online course to help get my certifications ready. He said if I pass that, then after my first dive I will get an honorary certificate.
Matt


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No experience needed and it feels great!
 
Hi Matt,

Just wanted to let you know that I caught your interview on Scuba Radio on Saturday. It was nice putting a voice with your photos.

Sounds like things are going pretty well with the project. Glad to hear it. It seems like every time I turn around I see a report on you. (Just picked up an old copy of Dive Chronicles in a shop (v.2, issue 5) and saw the piece on you there. Nice little article.) Looks like you're doing a great job getting the word out.

Anyway, hope things are going well. Take care,
Grier
 
Matt is now a radio star....DUUDE!!. So Matt when is the book? Yes I would buy it and proudly display it with my postcard that I got for the donation.

BTW, you are going on another dive this weekend so don that dry suit because the water is a balmy 46 degrees right now.
 
crpntr133:
Matt is now a radio star....DUUDE!!. So Matt when is the book? Yes I would buy it and proudly display it with my postcard that I got for the donation.
Got one of these...?? :D
 
Nope but what I gave him could buy many of those. Figured that Matt got the whole direct donation. If I traveled or dove with a bunch of different people it would be good advertising and I would buy a shirt.
 
Hi Grier, nice to hear from you! Glad you got a chance to listen to the interview. Thanks for continuing to follow the progess of my dream! I will be diving! I work hard everyday contacting people to get the word out because the more people that know about my dream, the faster it will happen. Thanks again Grier, and talk to you later.

Safe diving,
Matt :dazzler1:

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No experience needed and it feels great!
 
Hi crpntr. Nice to hear from you. A book? Well, that may happen some day, but for now, I am too busy. Anyone want to be the writer???? Lol. If I pull it off, maybe it'll be a movie. And not a dumb movie like Open Water, mine will be an accurate true story! I look forward to my next interview, it was good practice. So you are taking me diving again, that's really cool. I had my dry suit on for a couple hours the other day, latex hood and all! We wanted to see how well the special connectors that were attached into my dry suit worked, it was wonderful. Dive safe!
Matt :crafty:


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Hi Don! Thanks for promoting my dive club with my shirt! Take care dude.

Matt
 
With my dry suit in the water, everything turned out perfect. It made my day! It felt so COOL when the argon was put into my dry suit. While we were there my friend Drew went and tested this re-usable tubing I hope to use when I actually start diving, and it was able to withstand the pressure at 10 ft, so there’s one more thing to cross of the list lol. I attached a couple photos for you to see.

The guy with the wet suit on is Drew, he's my friend that is also a dive instructor, helped out with the dry suit and all. His finacee Marcie is the lady in the other wet suit, she is also an dive instructor. The one holding my head is a therapist at the center and there was another therapist at my feet for my first session. The lady with the black swimsuit on is my nurse Sara.There were 2 photographers there as well, and another story about me is due to come out in my local newspaper this weekend. I will be posting that as well.

Almost everyone wanted to dunk me so bad... but I didn't bring my AGA mask with for the first session lol. So next time that is the plan! After things settle down here a little bit, I hope to start going there weekly for some pool time.
With all that happened I feel one step closer to joining you all under the water!

Take care everyone and safe diving.

Matt :wink: :confined:

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No experience needed and it feels great!
 
laying there in the water...you look like you're in heaven....I'm so glad that it went well. You're getting there Matt, slowly but surely!
 
https://www.shearwater.com/products/teric/

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