Jameson Karst Edwards

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Awwwwhhh a beautiful happy smile! Wonderful pic!
 
Wow, he's grown so much. Great pic - his personality is coming through :) Might I say, he's lookin' pretty darn handsome as well :wink:
 
How CUTE!
Ber :lilbunny:
 
Lookin' good Marcie!
You're doing a bang up job.
Love,
Rick
 
well, of course *i* think he's a doll baby! :wink:

he can crawl really fast on forearms and sides of shins, not quite hands and knees. but there are lots of totally normal ways of crawling, so that one's fine. he pulled up three times yesterday! that means no more sleeping in the co-sleeper since he could theoretically pole vault right on outta there before i could wake up and stop him. so tonight he'll be in his big-boy crib in his room for the first time. i hope it goes well. he can wave and say 'bye-bye'. he can say 'mama' but i don't think it means anything yet. he eats anything not nailed down. he's usually a very cheerful happy smiley baby. he's doing great, thanks in large large part to all of y'all's prayers and good vibes!
 
Awesome progress Jameson! Now you'll have Mom on the run :D
Ber :lilbunny:
 
well, of course *i* think he's a doll baby! :wink:

he can crawl really fast on forearms and sides of shins, not quite hands and knees. but there are lots of totally normal ways of crawling, so that one's fine. he pulled up three times yesterday! that means no more sleeping in the co-sleeper since he could theoretically pole vault right on outta there before i could wake up and stop him. so tonight he'll be in his big-boy crib in his room for the first time. i hope it goes well. he can wave and say 'bye-bye'. he can say 'mama' but i don't think it means anything yet. he eats anything not nailed down. he's usually a very cheerful happy smiley baby. he's doing great, thanks in large large part to all of y'all's prayers and good vibes!


Woah marci, don't know how I missed that he was in his big boy bed. Can't wait to see the tyke in person again. It is amazing the progress he's made in the just about a year since he's come home.
 
an update - and sending a pic to someone to post.

yesterday we went to the endocrinologist and pulmonologist. he's doing great. he's *on* the growth charts, so he's catching up his growth. that means he's actually growing more & faster, working to catch up to his genetic potential. which, since he's off his o2, is wonderful - many babies, if o2 is stopped too soon, will slow their growth. so it's great validation that he's on the right track. for any math geeks, he was 6 standard deviations below the norm last year, and now he's 10th percentile. just wow.

he's officially off his oxygen now. we weren't using it, but the dr wanted us to keep it in case he needed it and she had him still on his diuretic and electrolyte supplements. well, he's off three of his meds now! one he'll be on till at least spring, one or maybe both of the others for at least another year. plus, his first night ever sleeping with monitors attached was 9/26...he's off the pulse oximeter!

he crawls *all* over, normal hands & knees. he pulls up everywhere & cruises. he pushes walking toys, opens drawers & cabinets, climbs up and down steps. he can say 'water', though it comes out as 'oo-ah-dah'. he knows a sheep says 'baaaa' and a puppy dog says 'uf-uf-uf'. he can sign 'milk' and 'all done' and 'more' and 'book' and 'dog'. he can play peekaboo, pattycake, and itsy bitsy spider. he eats everything - chinese, mexican, mongolian, soul food, pizza... he fights sleep but usually goes down for the night by 8:30 or so.

he's wonderful. he's catching up, getting more healthy, and going to megadive next week!

love to all y'all still following him...
 
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