Diving and Epilepsy

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This thread seems to have evolved into a discussion between NortheastWrecks, Dr. Stein, and me. Aside from my polemics of disability advocacy (sorry, it's an occupational hazard), the three of us are probably in complete agreement re the real issue of any diver displaying responsibility re safety, to oneself, to one's buddy, and to any others participating in the dive. Wingflyer's deviation into the issues of ADA or being judgment-proof only served to distract from the key point.

Some quick final thoughts:

Dr. Stein - Re bias in the information you cited: The "JAN" web site you noted is part of a federally funded, university-based program that, if anything, is going to be more sympathetic to the interests and rights of individuals with disabilities. You need give no concern to the possibility that, in clipping information from that website, you perpetuated some bias or misinformation!

Re the petit mal diagnosis, Wingflyer implied that he was diagnosed with P.M., however, you may have noted that in his 4/23/02 posting, what he actually said was "I keep telling you people that I have petit mal seizures not the convulsive kind, just the blacking out kind. I simply black out and sit there." Are we talking about a neurologist's diagnosis, Wingflyer's self-labeling, or, for that matter, an accurate labeling at all? Who knows? There are several other disorders with a cardinal feature of "blacking out." And, unfortunately, in the hypothetical situation of diving with Wingflyer under his "no ask, no tell" policy, the most that one has re information in the event of an emergency is, well, nothing. And that can be a formula for disaster, disability or not.

Re the incident of 10 yrs asymptomatic and then a calamitous recurrence: This is not the norm, but it is nontheless noteworthy. However, if I can use your words with only the slightest change of diagnosis, consider the person who had a heart attack long ago, but "has been free of any problems for more than 10 years and off medications . . . . Here was a person medically cleared to drive and out of the blue, she had an attack while driving." So was it irresponsible to clear an asymptomatic cardiac history person for driving? Would you see it as irresponsible to clear heart attack survivors for diving or to mandate disclosure of the individual's medical hx to others on the dive? I would hope that you would sooner promote an individualized assessment of risk to promote an informed decision.

Yes, epilepsy is a little different from cardiovascular diseases, but can we find a balance? I think NortheastWrecks captured that balance when, in response to the three hypothetical situations I described in my earlier posting, he suggested that he would seek more information from a diver in a presumably non-threatening manner, evaluate, offer verbal guidance, position himself/offer to be of assistance, or, in the face of persistent cluelessness, hedge by letting the divemaster know of the potential risk. But a strategy such as that offered by NortheastWrecks is reasonable only if the putative risk diver is comfortable and willing to disclose important information, an action which will only be fostered by other divers, certifying agencies, and health care professionals resisting the reflexive response of banning someone from diving simply on the basis of a diagnosis that typically was made by an independent party with no knowledge of diving.

Thanks for considering my position. And to NortheastWrecks, for your thoughtful analysis and response, the offer of the lunch at the best greasy pizza joint in the north Hartford area (and to Dr. Stein, equally erudite, I also extend the invite if the lure of artery-clogging consumables is sufficient to drag you up from New Jersey to Hartford! It may be a long way, but it's good pizza).
 
To both AllenG and Northeastwrecks,

It has truely been a privilige discussing this matter with you both. You have been thoughtful and supported your arguments extremely well--they changed in some fashion how I viewed the case. I have enjoyed the discussion immensely.

I'm sure this statement will get me in trouble but it is something that I have felt from the beginning of the thread. Gender has nothing to do with the content of this discussion but I have gotten the distinct feeling that Wingflyer is, in fact, female. This is not a "dig". Great care was used by this person to avoid any reference to gender. Some of the verbal mannerisms and arguments were more femine in nature. If you re-read the entire thread, you might get the same feeling too.

I find that women are, in general, a more caring and more willing to discuss personal problems. There have been a few clues along the way that just seems to point to a person who is doing all they can to overcome the stigma of a disability but to also prove that a woman can compete in a man's world. If I am incorrect, so be it. If not, then perhaps there is more than one agenda being presented. One stated and one under the table.

To AllenG. Your reference to cardiovascular disease may be correct. However, the point I was trying to make is that Wingflyery has repeatly indicated that he (she) is cleared to fly and drive. I was only trying to draw a parallel to this fact and that s--t happens. Even the doctors are wrong some of the time. An innocent child was affected by those decisions made under the best of circumstances. Wingflyer's reasoning and methods circumvents all of this and "don't ask, don't tell" is the nail in the coffin as far as I am concerned.

AllenG--don't know if I can take you up on a greasy pizza although it sounds great! But on any given weekend I am diving in the Miami area--boat trips and gas are free. Manged to land a 35 pound (50 inches long) Cobia (Ling) today. It nearly killed me. It completely wrapped me up in speargun line. It's one of the strongest fish in the ocean. They are known for breaking angler's legs on a boat and wrecking ice chests. My buddies untangled me and I managed to boat the fish while my buddy kept a close lookout for sharks.

If you are interested, let ME know. We don't use no stinking wetsuits down here!!! Northeastwrecks--consider yourself invited too. Leave the drysuit behind--you'll be laughed off the boat!

Sincerest Regards,

Larry Stein
 
Dear Dr. Stein:

Thanks for the invitation. The same applies to you. If you ever want to experience the thrill of discovering your own hand in 12 inches of vis, come on up.

Dan
 
Northeastwrecks,

Down here, when we experience our own hand 12 inches in front of our face, it's because something ate the arm in between!

Keep watching Shark Week on the Discovery Channel in, I believe, August. My friend, and sometimes dive buddy, Kent, is in it. He was bitten last year in the Bahamas by a bull shark. He used to have a calf on both legs. Now...just a calf-and-a-half...er...is that a heifer?

He's an instructor and needless to say it put a crimp in his schedule. He was fortunate to live. His wife kept her fist in the wound for an hour until they got to the hospital on the other side of Nassau. You don't dial 911 there!

The good news is that he is back to diving! He just hears a lot of do-do, do-do, dododododod when he dives now--something with his ears I think!

The footage used in the upcoming documentary was shot in Walker's Cay.

Regards and bon apetite,

Larry Stein
 
This is an intersting thread and has uncovered multiple concerns.

look back to wingflyer's posting earlier, and notice the adaptations made to wingflyer's illness.

Wingflyer has taken something that is normally contraindicated, and found a way to make the risks manageable.

The full face mask and communications with buddy have solved two problems..
First, Wingflyer will not be likely to convulse and drown. (Not certain to be safe, but much safer than denial)
Second, with buddy having the same gear, you eliminate the random-buddy-feeling-coerced problem.
Just like a blind man climbing Everest, itelligent assessment of the problems and careful planning make something that would be normally a No-No into a definite "Ok, under these circumstances, and with these precautions, I can see it as reasonable."

For that intelligent and reasoned approach, I applaud Wingflyer.

I really have a hard time with the idea of concealing assets to be judgment-proof, or assuming that that makes it all OK.

The only acceptable thing in my (sometimes less than humble) opinion is to mitigate the risk where you can, and remember that while you have the right to take your own risks, you don't necessarily have the right to put me at risk.

All of us, not just those with handicaps, need to remember our neighbors and fellow divers when we dive, and not increase their risks by our own actions.

Dive safe, blow bubbles, and appreciate the privilege this is to see a world seldom seen by others.

John Reinertson
 
AllenG:

I missed your earlier post regarding pizza. Thanks for the invitation. PM me and let's talk (I'd PM you, but my system says that I've turned that function off and I haven't quite figured out how to fix it).
 
NortheastWrecks - Apparently I can't even send you a PM until you set your account up to receive such messages. I will be glad to call or email you, but lest I might otherwise make erroneous conjectures re identity, may I assume that you are Daniel E. ?
 
For the record I am am male. You were whining to somebody earlier that I accused you of being bias....darn right I did because you were being bias. It is no big deal Stein, we are all bias at one point or another in our lives. What are you gonna do about it now, cry? ;-0 You argue with the perspective that your feces doesnt stink. I am sure a few of you all that were trying to chew on me have some skeletons in your closet. You all just remember next time you get paired up with a buddy that you do not know.....it could be me.



Love,
 

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