carebear
Guest
My cousin, a very healthy (triathlete/master diver/judo champion/etc.) 35yr old, passed away about 18 months ago due to a pulmonary embolism. For a while my family believed it had something to do with diving, which caused a LOT of problems between the ex-SO and myself. My family also believes she may have had an inherited blood clotting disorder called leiden factor V.
I have been doing some research over the past few months about clotting disorders and this particular disorder which was only discovered less than 10 years ago. (I know, morbid thoughts but hey I balance life in the whole work hard/play harder philosophy.
I wanted to share some of the things I found that I feel everyone should know! Please excuse my ignorance because I am not a dr, nor do I play one on TV!
Anywhere from .01%-5% of the population has leiden factor v or associated disorders which could cause clotting which COULD be fatal. Hardly anyone is tested for this disorder because it may lie symptomatic or mirror symptoms of other disorders and because it is so seemingly rare but most of all because NO ONE HAS HEARD OF IT!
Anything that could exacerbate your risk could leave you more suceptible to a fatal blood clot, including birth control, plane rides, and even diving (although I spoke with a dive medicine dr about this and he says the risk is minimal even with the disorder, so don't give up yet). Birth control pills are known to aggravate blood clotting yet this blood test is given out so rarely I don't know anyone who has even heard of it, much less had it, yet almost everyone I know has taken the pill at one time or another, including myself.
I wanted to raise awareness of this issue because most insurance companies will not even pay for this test without significant symptoms, yet they will still pay for drugs that could make the condition worse. So (carebear getting off her soapbox) I wanted to pose the question to the diving community: have any of you had this test or even heard of it?
I have been doing some research over the past few months about clotting disorders and this particular disorder which was only discovered less than 10 years ago. (I know, morbid thoughts but hey I balance life in the whole work hard/play harder philosophy.

Anywhere from .01%-5% of the population has leiden factor v or associated disorders which could cause clotting which COULD be fatal. Hardly anyone is tested for this disorder because it may lie symptomatic or mirror symptoms of other disorders and because it is so seemingly rare but most of all because NO ONE HAS HEARD OF IT!
Anything that could exacerbate your risk could leave you more suceptible to a fatal blood clot, including birth control, plane rides, and even diving (although I spoke with a dive medicine dr about this and he says the risk is minimal even with the disorder, so don't give up yet). Birth control pills are known to aggravate blood clotting yet this blood test is given out so rarely I don't know anyone who has even heard of it, much less had it, yet almost everyone I know has taken the pill at one time or another, including myself.
I wanted to raise awareness of this issue because most insurance companies will not even pay for this test without significant symptoms, yet they will still pay for drugs that could make the condition worse. So (carebear getting off her soapbox) I wanted to pose the question to the diving community: have any of you had this test or even heard of it?