Thank you all for your input. Unfortunately Sue said that there wasn't anything they can provide for us. We can have the suit customized from between $1500-3000. It was worth a shot but there is no way we can come up with the money to have something like that made for him. Thank you all again.
Thank you both very much! I emailed Susan a little while ago, I hope to hear back from her soon. If you learn of something new that could help and don't mind letting me know on here, or if you have a facebook on our page, A Miracle for Blake | Facebook, let us know! This little boy would be...
Hi my name is Tina and I hope you all are having a good day. I am looking so advice on possibly getting a customized suit for a 9 year old boy, Blake Loudenber, that is in need of a kidney transplant. Blake suffers from polycystic kidney disease and due to this he stands only 42 inches tall and...
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